The Perfect Focus

Finding focus in a blurry world…

Letter Published in Rangefinder: Followup


From the Letter Published in Rangefinder I got this nice reply from a reader…

Hi Richard,
Saw your letter in one of the photography magazines we get and had to write. I’m a photographer and I have 2 sons who were born legally blind. They have Nystagmus and also have Albinism.

Though born white as ghosts and legally blind, the pigmentation has increased in their hair and a little in their skin and I guess in their eyes as well because their eyesight has improved over the years. They are still very light compared to most people but they have learned how to deal with their physical shortcomings.

Both boys have been treated for years by doctors from Wills Eye in Philly and have had glasses and contacts to help their vision. The fact that they have monocular vision – they see with one eye at a time – I think helps when they take pictures with a camera through which we all see with one eye. A clear advantage in my eyes!

My older son, Ian, is now an attorney with a beautiful wife and 2 little boys and my younger son, Gabriel, just took over my photography business and has a beautiful wife and daughter.

I checked out your website and you have a great ‘eye‘, regardless of your vision stats. Just as my sons could never see the ball but adjusted their other faculties to compensate, you’ve learned timing and anticipation and used them to your advantage. Like my sons, I suspect your other senses are magnified to make up for any vision loss.

Anyway, your work is real nice and it was great reading your story. We’re located in Newtown Square just below King of Prussia and if you’re down this way, it would be a leasure to have you stop by the studio.

Best Holiday Wishes
Phil

Thanks Phil… 🙂

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Down the Rabbit Hole…


Morpheus GlassesMorpheus: I’m trying to free your mind, Neo. But I can only show you the door. You’re the one that has to walk through it.

A great quote form a frik’n awesome move. But life is not like the Matrix now is it? I don’t know Kung Fu, but I do know judo (We’ll get to that some other time).

So, how do you start this blog thing? You just type and others reply to your rambling thoughts? I’ve thought hard about how to start this, and what to expect. But I guess you could say I’m tired, tired of it all.

I was borne with Congenial Nystagmus; I have a visual acuity of 20/400 with out correction. Legally Blind as they say, stuck between seeing and not seeing, seeing enough to get around and do many normal things, (including photography) but not enough to be able to drive, or at least at this point for various personal reasons get around independently. Congenital Nystagmus affects about 1 in 2000 people. One survey in Oxfordshire, England identified 1 in every 670 children by the age of two. Like all vision problems there are many levels. Each person is different.

I’m in a bit of a; I guess you would say, mid life crises. I’m 28 years old, living at home, do not drive, and from a sheltered life have had little get around experience. Though I am not blind, I feel as if, maybe I would have been better off blind.

To get over the fear of traveling and other such things. In school, there was my Mobility Instructor from the schools Intermediate Unit… But with over protective parents, I was never sent to suggested camps, bus rides, and public transpiration outings. Only simple around the block skills.

I find this severely limiting now… As mom gets older, I am scared to death at where this leaves me. And the realization of childhood, and the well-meaning aunts, uncles, and grandparents who professed “We will always be there for you, and take you where you need to gois not the reality of my life today.

This innate fear of independent travel and alone travel has potentially cost me a spot on the USA Paralympic Blind Judo Team, to say the least an opportunity to train with them.

I am at this point taking steps to overcome this, the fear of travel, and the fear of independence. This web site is the start of a journey. With the inspiration of a friend, and his own journey, a will to walk with his service dog, and be less limited by Cerebral Palsy.

Cole and Ilia… simply… THANK YOU!
Yes Cole, even sensei is scared sometimes… 

Readers, please submit your comments, questions, thoughts. It’s what will keep this blog going.

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