And thanks Katie, Lilah mom for the wonderful mention on her blog “Lilah’s Hope“, go check her out!

As much as I read from other bloggers how they hate the stares, another way to offend is to assume you know what the other person feels like or thinks based on their disability.

Hoping you make good on the tease to write more along the theme of this post.

I don’t know what it is like to be Noah but I do know that it has to be so hard and so frustrating. It’s hard and frustrating for me as his Mom.

Recently, I wasn’t in the room and Noah needed the lamp on and tried to turn it on himself. He couldn’t because his fine motor skills just don’t allow him to. His brain knew what to do but his hands just wouldn’t cooperate. He got very frustrated and upset about it. Later, I sat and thought about how terrible it must be to want something as simple as a lamp turned on and not be able to do it for yourself.

Again, great post!

I try to treat him **normal** (whatever that is anyways) and let him just be a kid before anything else. But I don’t know what he feels like inside. I know that he probably thinks the way he feels is **normal** as far as his health is.

He doesn’t know what it’s like to run without getting tired and out of breath. He doesn’t know what it’s like to just come down with a small case of the sniffles. It always ends up being something more.

For now he doesn’t know that he has problems seeing due to his nystagmus. It’s just **normal** to him. He just works around it and keeps on trucking. He also doesn’t know that he is far behind his peers. One day he will, and I won’t know what to do when that day comes. How to help him get through the stares, the not so kind questions.

I only hope that I will be able to do the right thing for him.

I will never understand what it’s like to be him.

But I will continue to love him unconditionally. To treat him just as I do my other kids. To dicipline him when he does wrong, love him when he gets hurt, take care of him when he’s sick.

I don’t understand what it’s like to be disabled. But I do understand what it’s like to hurt when my child with a disability hurts, and to be sick when he is sick.

I also know that him, and you, and so many others out there are a major inspiration to me.

Thank you again for this post. Told you when my mind wasn’t mush I could come up with something.

But thank you for this post. It was great.